Guía de Recursos

AHA está desarrollando una guía de referencias y recursos para Usted con consejos para el seguro médico. También incluye un manual de referencias con información acerca de todos los productos y proveedores disponibles para ayudarle.

Vea lo que hemos puesto en marcha:  Guía de Recursos para la Comunidad

Servicios para el Empleo

Proyecto CHOICE/ELECCION

Es su elección, es su voz.

CHOICE (Comunidad que tiene la oportunidad de impactar con asistencia sanitaria equitativa) es un proyecto impulsado por la Federación de Hemofilia Americana (HFA), y apoyado por el Centro de Prevención y Control de Enfermedades (CDC). CHOICE recopila información por medio de encuestas en papel y en el internet. Esta encuesta recoge información acerca de las experiencias sucedidas con la salud de gente que ha sido diagnosticada por un médico con trastorno hemorrágico, y no puede recibir asistencia sanitaria en un centro financiado con fondos federales para tratamiento de la hemofilia (HTC). La meta de HFA para el Proyecto CHOICE es poder poner a buen uso los resultados de las encuestas para así mejorar las vidas de las personas en la comunidad de trastornos hemorrágicos.

Pulse o clic AQUI para rellenar la encuesta o para aprender más.

Becas

La Asociación de Hemofilia de Arizona facilita información acerca de becas de educación cuando lleguen a nuestro conocimiento. Cada proveedor de becas tiene requisitos específicos, lea los requisitos con detalle. Contacte la fuente de financiamiento si tiene alguna pregunta o preocupación. Muchos de estos organismos tienen fechas límites, por lo tanto, haga la solicitud a la mayor brevedad.

Beth Carew Memorial Scholarship

Amount: Ten $4,000.00 scholarships awarded

Candidate: Available to undergraduate students in the US with inherited bleeding disorders, for academic year 2010-2011

Deadline: Applications only accepted 2/1 through 4/15

Contact: Colburn-Keenan Foundation

PO Box 811 Enfield, CT 06083

Phone: 800-966-2431 or 860-749-7522

www.colburn-keenanfoundation.org

Biogen Idec Hemophilia Scholarship Program

Amount: In our first year (2012), we awarded a total of $50,000 divided among 11 deserving people with hemophilia, ranging from 17 to 51 years of age with diverse educational goals. We are honored to continue our support of the community’s dreams in 2013 as we plan once again to donate a total of $50,000 to multiple winners, with individual awards ranging from $2,500 – $7,000.

Candidate: Individuals with hemophilia A or B who are pursuing a vocational or technical certificate, a 2 or 4 year degree program or graduate degree are encouraged to apply.

Deadline: Our scholarship program opens on February 14th, 2013 and applications are due by midnight June 15th, 2013

Contact: Website: http://www.biogenidechemophilia.com/hemophilia-community/hemophilia-scholarships/hemophilia-scholarships.html. Current 2012 winners’ profiles are featured on our website! We encourage you to check out our 11 winners by clicking on the “2012 Winners” button to see these incredible stories and their accomplishments.
Contact – Larissa Busby, 781-464-4266 or larissa.busby@biogenidec.com for more details.

The BioRX/Hemophilia North Carolina Educational Scholarships

Amount: Four $2,000 scholarships

Candidate: Caregivers of children affected with bleeding disorders; a person diagnosed with a bleeding disorder; or a sibling of a person diagnosed; must be in an accredited college or university and interested in obtaining a degree in the medical field. You do not have to be a resident of North Carolina to apply. Contact cbarnes@biorx.net (Chris Barnes) for an application.

Deadline: May 1

Contact: Chris Barnes

Hemophilia of North Carolina

PO Box 70

Cary, NC 27512-0070

(919) 749-3196

www.biorx.net/2009_scholarship_app.pdf

Bob Hersh Memorial Scholarship

Amount: $1,000

Candidate: High school seniors, graduates, or students in good standing who are already enrolled in a post-secondary program, and planning to enroll in a course of study at an accredited 2 or 4 year college, university, or vocational technical school program or certified training program, with priority given to undergraduate study. A person affected directly or indirectly by hemophilia, vWD, hereditary bleeding disorder and entering a helping or teaching profession may apply for this scholarship.

Deadline: April 4

Contact: Mary Gooley Hemophilia Center

1415 Portland Avenue, Suite 500

Rochester, NY 14612

Phone: 585-922-5700

www.hemocenter.org

Calvin Dawson Memorial Scholarship

Amount: Number and amount of scholarships varies

Candidate: Florida resident with bleeding disorder attending a college, university or trade school.

Deadline: April 30

Contact: Hemophilia Foundation of Greater Florida

1350 North Orange Avenue, Suite 227

Winterpark, FL 32789

(800) 293-6527

Cascade Foundation of Southern Arizona Educational Scholarship

Amount: $2,000

Candidate: Open to individuals with a bleeding disorder (Hemophilia, vWD, or other factor deficiency), or be the sibling or the child of an affected individual. Candidate must live in Southern Arizona.

Deadline: June 1

Contact: Cascade Foundation of Southern Arizona, Inc.

PO BOX 40397

Tucson, AZ 85717

info@cascadefoundationaz.org

www.cascadefoundationaz.org

Christopher Pitkin Memorial Scholarship

Amount: Amounts of the scholarships vary from $500 – $1,000

Candidate: All members of the hemophilia and bleeding disorders community, including spouses, siblings and children

Deadline: not yet posted

Contact: Hemophilia Foundation of Southern California

6720 Melrose Avenue

Hollywood, CA 90038

Phone: 323-525-0440

www.hemosocal.org

Dave Madeiros Scholarship Program

Amount: Several scholarships up to $1,000 for creative arts and $2,000 for continuing education

Candidate: Individuals with a bleeding disorder and their immediate family

Contact: Factor Foundation of America

Phone: (866) 843-3362

Web site: www.factorfoundation.org

Education Advantage Scholarship Program, Supported by Baxter

Amount: Up to $15,000/year to attend 4-year colleges and universities (multiple scholarships available)

Up to $2,500/year to attend community college or vocational/technical programs (multiple scholarships available)

Up to $150 reimbursement for passing the GED Test (multiple scholarships available)

Candidate: Teenagers and adults with hemophilia A or inhibitors. For scholarships, applicants must be enrolled in, or planning to enroll in, an accredited college, university, community college, or technical/vocational school. For GED Assistance, applicants must have recently passed the GED Test.

Deadline: April 1

Contact: Scholarship America (program administrator)

(877) 544-3018

www.myeducationadvantage.com

“Education is Power” Scholarship

Amount: various awards ranging from $150 to $15,000

Candidate: Individuals with hemophilia A attending university, technical school or passing GED test

Deadline: May 1

Contact: MedPro Rx, Inc.

Phone: 866-528-4963

www.medprorx.com

Edu-Grants (for K-12 learning assistance)

Amount: Up to $500 financial award per child per year to help pay for tutors or learning assistance when students (K-12) miss a significant number of days due to hemophilia

Candidate: people with hemophilia diagnosed with an inhibitor or individuals with factor VII deficiency

Deadline: Ongoing

Contact: Novo Nordisk

Phone: 856-573-9400

www.novoseven-us.com

Eric Delson Memorial Scholarship Program

Amount: Ten $1,000 scholarships

Candidate: Students clinically diagnosed with hemophilia or von Willebrand Disease is eligible to apply.

Deadline: July 1

Contact: The Eric Delson Memorial Scholarship Program

www.CVScaremarkspecialtyrx.com

Eric Dostie Memorial College Scholarship

Amount: Ten $1,000 scholarships

Candidate: Persons with hemophilia or a related bleeding disorder, or their family members, who are enrolled full-time in an accredited two- or four-year college program.

Deadline: March 1

Contact: NuFACTOR Scholarship Administrator

41093 County Center Drive

Temecula, CA 92591

800-323-6832 x 1300

http://NuFACTOR.com/pages/eric_dostie.html

Gina Stack Scholarship

Amount: Maximum amount of $1,500

Candidate: Program is open to persons, and their immediate family members, who have hemophilia or other, inherited bleeding disorder. Must be entering a degree program with a focus on the healthcare/medical profession.

Contact: Gina Stack Memorial Scholarship Program

c/o TSBDF

635 W. Seventh Street, Suite 407

Cincinnati, OH 45203

Hemophilia Foundation of Michigan Academic Scholarship

Amount: Two $1,500 scholarships.

Candidate: Person, or immediate family member, with hemophilia or other inherited bleeding disorder residing in Michigan.

Deadline: March (applications available in January)

Contact: HFM Academic Assistance

The Hemophilia Foundation of Michigan

905 West Eisenhower Circle, Suite 107

Ann Arbor, MI 48103

(800) 482-3041

(734) 332-4226

Fax: (734) 332-4204

Hemophilia Health Services Memorial Scholarship Program

Amount: Several $1,500 and more awards a full academic year.

Candidate: U.S. citizen with hemophilia, VWD or other bleeding disorder. Must be a high school student about to attend college, a college student, a college senior planning to attend graduate school or graduate school student.

Deadline: May 1

Contact: Hemophilia Health Services

Phone: (800) 289-6501 ext 5175

Web site: www.HemophiliaHealth.com

HFA Artistic Endeavors Scholarship

Amount: $1,500

Candidate: Person with blood-clotting disorder not necessarily attending college. Scholarship can be used for producing a play, writing a book, painting, publishing or another artistic endeavor. Imagination and portfolio required.

Deadline: April 30

Contact: Hemophilia Federation of America (HFA)

210 7th St. SE Suite 200B

Washington, DC 20003

202-675-6984

800-230-9797

Fax: 202-675-6983

www.hemophiliafed.org

HFA Educational Scholarship

Amount: Between one and three $1,500 scholarships

Candidate: Person with a blood-clotting disorder attending any accredited two- or four-year college, university or vocation/technical school in the US.

Deadline: April 30

Contact: Hemophilia Federation of America (HFA)

210 7th St. SE Suite 200B

Washington, DC 20003

202-675-6984

800-230-9797

Fax: 202-675-6983

www.hemophiliafed.org

HFA Parent Continuing Education Scholarship

Amount: $1,500

Candidate: Parent of a school-age child with a blood-clotting disorder. For use in furthering the parent’s own education.

Deadline: April 30

Contact: Hemophilia Federation of America (HFA)

210 7th St. SE Suite 200B

Washington, DC 20003

202-675-6984

800-230-9797

Fax: 202-675-6983

www.hemophiliafed.org

HFA Sibling Continuing Education Scholarship

Amount: $1,500

Candidate: Sibling of a person with a blood-clotting disorder. For use in furthering the sibling’s own education at a college, university or trade school.

Deadline: April 30

Contact: Hemophilia Federation of America (HFA)

210 7th St. SE Suite 200B

Washington, DC 20003

202-675-6984

800-230-9797

Fax: 202-675-6983

www.hemophiliafed.org

Joshua Gomes Memorial Scholarship Fund

Amount: Several $1,000 awards

Candidate: Individuals living with HIV/AIDS accepted or enrolled in college in the US

Contact: Joshua Gomes Memorial Scholarship Fund

Phone: (303) 761-3055

Web site: www.joshuagomes.org

The Kevin Child Scholarship

Amount: $500 and $1,000

Candidate: Person with hemophilia or VWD. Must be a high school senior planning to attend college, university or vocational school; or a college student pursuing post-secondary education.

Deadline: June 27

Contact: Renee LaBrew

Dept. of Finance, Administration & MIS

The National Hemophilia Foundation

116 West 32nd Street, 11th Floor

New York, NY 10001-3212

(800) 42-HANDI

www.hemophilia.org

Lawrence Madeiros Scholarship

Amount: Several $1,000 or more awards

Candidate: Student with an inherited bleeding disorder or other chronic disorder attending an accredited college or university

Contact: Positudes – The Lawrence Madeiros Scholarship

Phone: (518) 661-6005

Web site: www.adirondackspintacular.com

Mary M. Gooley Hemophilia Venter, Inc. Scholarship Fund

Amount: maximum award of $2,000

Candidate: High school seniors, graduates, or students in good standing who are already enrolled in a post-secondary program, and planning to enroll in a course of study at an accredited 2 or 4 year college, university, or vocational technical school program or certified training program, with priority given to undergraduate study. A person affected directly or indirectly by hemophilia, von Willebrand Disease, hereditary bleeding disorder or Hemochromatosis

Deadline: April 4

Contact: Mary Gooley Hemophilia Center

1415 Portland Avenue, Suite 500

Rochester, NY 14612

Phone: 585-922-5700

www.hemocenter.org

Michael Bendix Sutton Foundation

Amount: Two $2,000 scholarships

Candidate: Person with hemophilia pursuing pre-law study.

Deadline: March 30

Contact: Michael Bendix Sutton Foundation

c/o Marion B. Sutton

300 Maritine Avenue

White Plains, NY 10601

Mike Hylton and Ron Niederman Memorial Scholarships

Amount: Ten $1,000 scholarships

Deadline: April 30

Candidate: Men with hemophilia or VWD, or immediate family member, attending or entering a college, university, trade or technical school. Must be a US resident.

Contact: Factor Support Network Pharmacy

Phone: (877) 376-4968

Web site: www.factorsupport.com

Email: scholarships@factorsupport.com

Millie Gonzalez Memorial Scholarship

Amount: Five $1000 awards

Deadline: April 30

Candidate: Women diagnosed with hemophilia or von Willebrand disease entering or attending college or vocational school. Must be a US resident.

Contact: Factor Support Network Pharmacy

Phone: (877) 376-4968

Web site: www.factorsupport.com

Email: scholarships@factorsupport.com

National Cornerstone Healthcare Services

Amount: Several $500 to $1,000 awards a year

Deadline: April 1

Candidate: Person diagnosed with a bleeding disorder, parent, spouse, partner, child or sibling of a person diagnosed with a bleeding disorder.

Contact: National Cornerstone Healthcare Services

Phone: (877) 616-6247

Web site: www.nc-hs.com

Professor Ulla Hedner Scholarships

Amount: From $2,000 to $7,000 per person per year

Deadline: April 30

Candidate: Having either hemophilia with an inhibitor or FVII deficiency. Must be a high school senior, college or vocational student under the age of 23

Contact: Novo Nordisk

Phone: (877) 668-6777

Website: www.novoseven-us.com

Rachel Warner Scholarship

Amount: Funds are varied and limited

Candidate: Person with bleeding disorder.

Deadline: May 1

Contact: The Committee of Ten Thousand

c/o Dave Cavenaugh

236 Massachusetts Avenue, Suite 609

Washington, DC 20002

(800) 488-2688

Salvatore E. Quinci Foundation Scholarship

Amount: Two $2,000 scholarships

Candidate: Person diagnosed with hemophilia or other bleeding disorder accepted into an accredited university, college or vocational/technical school.

Deadline: April 2

Contact: Salvatore E. Quinci Foundation, Inc.

178 Florence Street

Melrose, MA 02176

781-760-7138

www.seqfoundation.org

SevenSECURE Adult Education Grants

Amount: Grants of up to $2500

Candidate: Adults with inhibitors can apply for grants up to $2500 for training to help improve their career or transition to a new one.

Deadline: Year-round

Contact: SevenSECURE

1-877-NOVO-777

SevenSECURE@rxcrossroads.com

www.novoseven-us.com

SevenSECURE K-12 Edu-Grants

Amount: Grants of up to $500 per person per year

Candidate: K-12th grade tutoring for any consumer with hemophilia and inhibitors are awarded up to $500 a year to help families who require additional tutoring or other forms of learning help.

Deadline: Year-round

Contact: SevenSECURE

1-877-NOVO-777

SevenSECURE@rxcrossroads.com

www.novoseven-us.com

SevenSECURE: Ulla Hedner Scholarship

Amount: Scholarship of up to $7000

Candidate: Adults with inhibitors can apply for scholarships up to $7000 planning to attend or attending as a full-time student at a college or university

Deadline: April 30

Contact: SevenSECURE

1-877-NOVO-777

SevenSECURE@rxcrossroads.com

www.novoseven-us.com

Fax: (202) 543-6720

Soozie Courter 'Sharing a Brighter Tomorrow' Hemophilia Scholarship Program

Amount: Twelve $2,500 college undergraduate scholarships and five $4,000 graduate scholarships.

Candidate: Students with hemophilia A or B. The program is open to high school seniors, students who have completed high school or an equivalent program (eg, graduate equivalency diploma [GED]), and students enrolled in junior college, college (undergraduate or graduate), or vocational school.

Deadline: June 26

Contact: Pfizer

1-888-999-2349

www.hemophiliavillage.com (Programs & Services)

Statton Family Scholarship

Amount: Scholarship to Juniata College in Huntingdon, PA up to 100% of need

Candidate: Students must be accepted and intending to study at Juniata College. Applicants must have been diagnosed witha bleeding/blood disorder and/or HIV/AIDS or have an immediate family member with one the diagnosis. They must apply to the college and state in the application that they wish to be considered for the Statton Family Scholarship

Deadline: Application must be received by the college no later than Feb 1st for the following academic year

Contact: Valerie Rennell, Director of Student Financial Planning

Email: rennelv@juniata.edu

www.juniata.edu

Together Forward Scholarship Program

Amount: Four $2,500 awards

Candidate: Individuals living with hemophilia or von Willebrand disease enrolled in full-time undergraduate studies at a 4 year college or University.

Deadline: April 1

Contact: Coram Hemophilia Services

Ph: (800) 310-4053

Web site: www.coramhemophilia.com/scholarship

Victory for Women Academic Scholarship for Women with Bleeding Disorders

Amount: Two awards of $2,500

Candidate: Applicants must be female residents of the US and have a bleeding disorder (includes von Willebrand disease, hemophilia carrier or other clotting factor deficiencies)

Deadline: May 20

Contact: Patrice Flax, Manager of Education, National Hemophilia Foundation

P.O. Box 971483
Ypsilanti, MI. 48197
Ph: (734) 890-2504

Email: pflax@hemophilia.org

Web site: Victory For Women with Blood Disorders