As children with bleeding disorders grow, the Arizona Hemophilia Association welcomes their participation in programs that foster successful strategies for living.
Epic is a teen leadership opportunity to help foster independence, leadership and compliance for students 9th to 12th grade. Epic is open to any family member between the age limit that is affected by a bleeding disorder, either directly or indirectly. Contact Steve at (602) 955-3947 if you’re interested in getting involved with Epic!
Future Leaders is a new program for teens and young adults in our community who are interested in learning about advocacy. These Future Leaders learn about the history of bleeding disorders, the importance of having a voice about access to quality and affordable healthcare and how to speak with public officials. In 2015, they attended the legislative day and took the lead in meeting with legislators and telling their story.
In February 2016, the Arizona Hemophilia Association selected 10 young adults from our Future Leaders group to travel to Washington, D.C. for the National Hemophilia Foundation’s (NHF) Washington Days. We helped spread the word about March 2016 being the first annual Bleeding Disorders Awareness Month and used our social media skills to reach even more people with our message. Check out this video made by the Washington Days attendees…you’ll see our Future Leaders front and center!