Resource Guide

AHA is developing a guide for referrals and resources for you along with health insurance tips.  It will also include a reference manual with information on all products and providers available to help you.

See what we have started:  Community Resources

Patient Assistance Programs

While the ACA’s implementation did many great things to provide access to healthcare coverage for the hemophilia and related bleeding disorders community, affordability still remains an issue for many.  NHF’s Public Policy Team is often asked about resources available to assist patients with paying their premiums or out-of-pocket costs.  In response to many inquiries, they have developed THIS DOCUMENT detailing patient assistance programs that remain available to members of the bleeding disorders community.

Scholarships

The Arizona Hemophilia Association provides information about educational scholarships when we are made aware of them. Each scholarship provider has specific requirements, be sure to read the requirements thoroughly. Contact the funding source with any questions or concerns. Many have early deadlines, so apply as early as possible.

Beth Carew Memorial Scholarship

Amount: The number of scholarship awards vary and the scholarship amounts range from $3,000 – $6,000 annually.

Candidate: Applicants must be diagnosed with an inherited bleeding disorder.

Deadline: Information opens in December

Contact: Colburn-Keenan Foundation

PO Box 811 Enfield, CT 06083

Phone: 800-966-2431

www.colburn-keenanfoundation.org

Diplomat/Hemophilia North Carolina Educational Scholarships

Amount: $500 to $3,000

Candidate: Caregivers of children affected with bleeding disorders; a person diagnosed with a bleeding disorder; or a sibling of a person diagnosed. You do not have to be a resident of North Carolina to apply. Contact cbarnes@biorx.net (Chris Barnes) for an application.

Deadline: May 1

https://www.diplomatpharmacy.com/resources/hemophilia-of-north-carolina-educational-scholarship-program/

Bob Hersh Memorial Scholarship

Amount: $1,000

Candidate: High school seniors, graduates, or students in good standing who are already enrolled in a post-secondary program, and planning to enroll in a course of study at an accredited 2 or 4 year college, university, or vocational technical school program or certified training program, with priority given to undergraduate study. A person affected directly or indirectly by hemophilia, vWD, hereditary bleeding disorder and entering a helping or teaching profession may apply for this scholarship.

Deadline: April

http://www.hemocenter.org/programs-services/scholarship-opportunities-for-the-bleeding-disorders-community/

Cascade Foundation of Southern Arizona Educational Scholarship

Amount: $2,000

Candidate: Open to individuals with a bleeding disorder (Hemophilia, vWD, or other factor deficiency), or be the sibling or the child of an affected individual. Candidate must live in Southern Arizona.

Contact: Cascade Foundation of Southern Arizona, Inc.

PO BOX 40397

Tucson, AZ 85717

info@cascadefoundationaz.org

www.cascadefoundationaz.org

Eric Delson Memorial Scholarship Program

Amount: Varies

Candidate: Students clinically diagnosed with hemophilia or von Willebrand Disease is eligible to apply.

Deadline: July 1

Contact: The Eric Delson Memorial Scholarship Program

Scholarship Management Services
One Scholarship Way
Saint Peter, Minnesota 56082

https://www.cvsspecialty.com/wps/portal/specialty/patients/drugs-conditions/conditions/hemophilia/!ut/p/a1/jZBBc4IwEIV_iweuZDERkt5SSlMLM0hRi7l0cEohHSQMUvn7jYz20lbdy87ufO_N20USZUg2-UGVea90k9fHWbpvXKxXCfieazoFLvzQf0kSByg2wMYAgjpCxATCOGUMOMHBeiEeMVBymx7-KQ7X9K9IjghdRL5zTABBhIGH8fLB5x4Q1z0BPx506UyNRwhees8wTJ0TcOmGEWBPFOZEGCDhJgWLSQCEQUrPDheueEayrPV2_OiGN1tMSyS74qPois7-6sy66vt2f2eBBcMw2FWx022lapXbuistaPR7YQH1Zvgvg0rve5T91qF2t8pAzT9n9SHifDL5Bitmc9k!/dl5/d5/L2dBISEvZ0FBIS9nQSEh/#eric-delson-memorial-scholarship

HFA Educational Scholarship

Amount: Between one and three $1,500 scholarships

Candidate: Person with a blood-clotting disorder attending any accredited two- or four-year college, university or vocation/technical school in the US.

Deadline: April 30

Contact: Hemophilia Federation of America (HFA)

210 7th St. SE Suite 200B

Washington, DC 20003

202-675-6984

800-230-9797

Fax: 202-675-6983

www.hemophiliafed.org

HFA Parent Continuing Education Scholarship

Amount: $1,500

Candidate: Parent of a school-age child with a blood-clotting disorder. For use in furthering the parent’s own education.

Deadline: April 30

Contact: Hemophilia Federation of America (HFA)

210 7th St. SE Suite 200B

Washington, DC 20003

202-675-6984

800-230-9797

Fax: 202-675-6983

www.hemophiliafed.org

HFA Sibling Continuing Education Scholarship

Amount: $1,500

Candidate: Sibling of a person with a blood-clotting disorder. For use in furthering the sibling’s own education at a college, university or trade school.

Deadline: April 30

Contact: Hemophilia Federation of America (HFA)

210 7th St. SE Suite 200B

Washington, DC 20003

202-675-6984

800-230-9797

Fax: 202-675-6983

www.hemophiliafed.org

Joshua Gomes Memorial Scholarship Fund

Amount: Several $1,000 awards

Candidate: Individuals living with HIV/AIDS accepted or enrolled in college in the US

Contact: Joshua Gomes Memorial Scholarship Fund

Phone: (303) 761-3055

Web site: www.joshuagomes.org

The Kevin Child Scholarship

Amount: $500 and $1,000

Candidate: Person with hemophilia or VWD. Must be a high school senior planning to attend college, university or vocational school; or a college student pursuing post-secondary education.

Deadline: June 27

Contact: Renee LaBrew

Dept. of Finance, Administration & MIS

The National Hemophilia Foundation

116 West 32nd Street, 11th Floor

New York, NY 10001-3212

(800) 42-HANDI

www.hemophilia.org

Lawrence Madeiros Scholarship

Amount: Several $1,000 or more awards

Candidate: Student with an inherited bleeding disorder or other chronic disorder attending an accredited college or university

Contact: Positudes – The Lawrence Madeiros Scholarship

Phone: (518) 661-6005

Web site: www.adirondackspintacular.com

Mary M. Gooley Hemophilia Venter, Inc. Scholarship Fund

Amount: maximum award of $2,000

Candidate: High school seniors, graduates, or students in good standing who are already enrolled in a post-secondary program, and planning to enroll in a course of study at an accredited 2 or 4 year college, university, or vocational technical school program or certified training program, with priority given to undergraduate study. A person affected directly or indirectly by hemophilia, von Willebrand Disease, hereditary bleeding disorder or Hemochromatosis

Deadline: April 4

Contact: Mary Gooley Hemophilia Center

1415 Portland Avenue, Suite 500

Rochester, NY 14612

Phone: 585-922-5700

www.hemocenter.org

Michael Bendix Sutton Foundation

Amount: Two $2,000 scholarships

Candidate: Person with hemophilia pursuing pre-law study.

Deadline: March 30

Contact: Michael Bendix Sutton Foundation

c/o Marion B. Sutton

300 Maritine Avenue

White Plains, NY 10601

Mike Hylton and Ron Niederman Memorial Scholarships

Amount: Ten $1,000 scholarships

Deadline: April 30

Candidate: Men with hemophilia or VWD, or immediate family member, attending or entering a college, university, trade or technical school. Must be a US resident.

Contact: Factor Support Network Pharmacy

Phone: (877) 376-4968

Web site: www.factorsupport.com

Email: scholarships@factorsupport.com

Millie Gonzalez Memorial Scholarship

Amount: Five $1000 awards

Deadline: April 30

Candidate: Women diagnosed with hemophilia or von Willebrand disease entering or attending college or vocational school. Must be a US resident.

Contact: Factor Support Network Pharmacy

Phone: (877) 376-4968

Web site: www.factorsupport.com

Email: scholarships@factorsupport.com

National Cornerstone Healthcare Services

Amount: Several $500 to $1,000 awards a year

Deadline: April 1

Candidate: Person diagnosed with a bleeding disorder, parent, spouse, partner, child or sibling of a person diagnosed with a bleeding disorder.

Contact: National Cornerstone Healthcare Services

Phone: (877) 616-6247

Web site: www.nc-hs.com

Professor Ulla Hedner Scholarships

Amount: From $2,000 to $7,000 per person per year

Deadline: April 30

Candidate: Having either hemophilia with an inhibitor or FVII deficiency. Must be a high school senior, college or vocational student under the age of 23

Contact: Novo Nordisk

Phone: (877) 668-6777

Website: www.novoseven-us.com

Rachel Warner Scholarship

Amount: Funds are varied and limited

Candidate: Person with bleeding disorder.

Deadline: May 1

Contact: The Committee of Ten Thousand

c/o Dave Cavenaugh

236 Massachusetts Avenue, Suite 609

Washington, DC 20002

(800) 488-2688

Salvatore E. Quinci Foundation Scholarship

Amount: Two $2,000 scholarships

Candidate: Person diagnosed with hemophilia or other bleeding disorder accepted into an accredited university, college or vocational/technical school.

Deadline: April 2

Contact: Salvatore E. Quinci Foundation, Inc.

178 Florence Street

Melrose, MA 02176

781-760-7138

www.seqfoundation.org

SevenSECURE Adult Education Grants

Amount: Grants of up to $2500

Candidate: Adults with inhibitors can apply for grants up to $2500 for training to help improve their career or transition to a new one.

Deadline: Year-round

Contact: SevenSECURE

1-877-NOVO-777

SevenSECURE@rxcrossroads.com

www.novoseven-us.com

SevenSECURE K-12 Edu-Grants

Amount: Grants of up to $500 per person per year

Candidate: K-12th grade tutoring for any consumer with hemophilia and inhibitors are awarded up to $500 a year to help families who require additional tutoring or other forms of learning help.

Deadline: Year-round

Contact: SevenSECURE

1-877-NOVO-777

SevenSECURE@rxcrossroads.com

www.novoseven-us.com

SevenSECURE: Ulla Hedner Scholarship

Amount: Scholarship of up to $7000

Candidate: Adults with inhibitors can apply for scholarships up to $7000 planning to attend or attending as a full-time student at a college or university

Deadline: April 30

Contact: SevenSECURE

1-877-NOVO-777

SevenSECURE@rxcrossroads.com

www.novoseven-us.com

Fax: (202) 543-6720

Soozie Courter 'Sharing a Brighter Tomorrow' Hemophilia Scholarship Program

Amount: Twelve $2,500 college undergraduate scholarships and five $4,000 graduate scholarships.

Candidate: Students with hemophilia A or B. The program is open to high school seniors, students who have completed high school or an equivalent program (eg, graduate equivalency diploma [GED]), and students enrolled in junior college, college (undergraduate or graduate), or vocational school.

Deadline: June 26

Contact: Pfizer

1-888-999-2349

www.hemophiliavillage.com (Programs & Services)

Statton Family Scholarship

Amount: Scholarship to Juniata College in Huntingdon, PA up to 100% of need

Candidate: Students must be accepted and intending to study at Juniata College. Applicants must have been diagnosed witha bleeding/blood disorder and/or HIV/AIDS or have an immediate family member with one the diagnosis. They must apply to the college and state in the application that they wish to be considered for the Statton Family Scholarship

Deadline: Application must be received by the college no later than Feb 1st for the following academic year

Contact: Valerie Rennell, Director of Student Financial Planning

Email: rennelv@juniata.edu

www.juniata.edu

Together Forward Scholarship Program

Amount: Four $2,500 awards

Candidate: Individuals living with hemophilia or von Willebrand disease enrolled in full-time undergraduate studies at a 4 year college or University.

Deadline: April 1

Contact: Coram Hemophilia Services

Ph: (800) 310-4053

Web site: www.coramhemophilia.com/scholarship

Victory for Women Academic Scholarship for Women with Bleeding Disorders

Amount: Two awards of $2,500

Candidate: Applicants must be female residents of the US and have a bleeding disorder (includes von Willebrand disease, hemophilia carrier or other clotting factor deficiencies)

Deadline: May 20

Contact: Patrice Flax, Manager of Education, National Hemophilia Foundation

P.O. Box 971483
Ypsilanti, MI. 48197
Ph: (734) 890-2504

Email: pflax@hemophilia.org

Web site: Victory For Women with Blood Disorders