Social Groups provide an opportunity for our bleeding disorder community to network, share and support one another.

FAME


The Basics of School Advocacy (Virtual)
Tuesday, January 19th, 2021 @ 6:30pm-8:00pm

This virtual presentation guides parents and caregivers on how to best advocate for their child with a bleeding disorder in the school setting. It will include an overview of IEPs, 504s, and health care plans utilized in schools.

Register Here

Fundamentos de la promoción escolar
jueves, 21 de enero de 2021 6:30pm-8:00pm

Esta presentación virtual guía a los padres y cuidadores sobre cómo abogar mejor por su hijo con un trastorno hemorrágico en el entorno escolar. Esta presentación incluye una visión general de los IEP, 504 y planes de atención médica utilizados en las escuelas.

Registrarse aquí

Rescheduled (New Date Coming Soon) – FAME – Braving Change

Ever wonder how to stay positive when confronted with personal challenges? We all experience moments of change in our lives – some bumpier than others. We’ll explore the concept of resilience in the face of change, for both children and adults, including ways to help adapt to difficult circumstances, factors that may help you, characteristics of resilient individuals, and ways of fostering these skills within your family, at school, and in the larger community.

Register Here


Women’s Group

Women’s Group is an educational group for women in the bleeding disorder community.

This group is open to carriers, mothers, wives, daughters and sisters of individuals with inherited bleeding disorders 18 years and older.


Women’s Retreat

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The Women’s Retreat is an educational and social event focusing on issues faced by those who have a bleeding disorder as well as mothers, wives, daughters and sisters of individuals with inherited bleeding disorders 18 years and older. It provides support and education to women while enjoying a relaxing environment.  

 

The women of our bleeding disorder community had a wonderful time at the 2019 Women’s Retreat! Thank you CSL Behring for making this wonderful event happen!

Sponsored and Partnered By

Check back for 2020 dates and registration! 

Young Adult Programs

FUSION

Joins us as we focus on finding balance in life, managing bleeding disorders, and talk about situations young adults are facing today. The Fusion Summit educate parents and provide real solutions to intervene, guide and support their children.

The Fusion summit is intended for Arizona Bleeding Disorder members ages 14-22 and their parents

Dates & Topics

  • November 14th – Balancing Emotional Wellness @ 10:30am – 12:00pm
  • November 21st – The Road to Independence (youth)/Constructive Conversations (adults) @ 10:30am – 12:00pm
  • December 5th – Empowered: Tools for Self Advocacy @ 10:30am – 12:00pm
  • January 14th, 6:30pm – Constructive Conversations
  • January 28th, 6:30 pm – Adversity, Strength, and Resilience

This Program is sponsored by:

 

 

 

Click Here to Register

Men’s Group

An adult group designed for men looking for comaradere, education, and social support.

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This group is open to adult men with bleeding disorders as well as fathers, sons, and brothers of those individuals with inherited bleeding disorders 18 years and older.

Hispanic Heritage

¡Los Trastornos de Sangrado de Arizona te invitan a participar como una comunidad unida, en la Celebración de Nuestra Herencia Hispana!

*¡Todas las sesiones serán solo en español!