Social Groups provide an opportunity for our bleeding disorder community to network, share and support one another.

FAME


Nursing Project: The Importance of Regular Exercise

Tuesday October 27th – 12pm

Please join Brent Davila, a fellow community member with severe hemophilia A, for a brief (10-15 minute) online Zoom meeting. Brent will be giving a presentation on the importance of regular exercise for individuals with bleeding disorders. He would greatly appreciate your assistance in helping him complete this for his Nursing Project to the complete his nursing degree.

Register Here!


FAME: Staying Active Through Every Stage

Tuesday November 10th 2020 – 6:30pm

Join us for a virtual discussion on how to stay active during all stages of life. Learn tips, tricks and ideas for staying active through various stages of your bleeding disorder and more. Presented by CSL Behring.

Register Here!


FAME: The Basics of School Advocacy

Thursday, November 12th – 6:30pm

This virtual presentation from HFA guides parents and caregivers on how to best advocate for their child with a bleeding disorders in the school setting. It will include an overview of IEP’s, 504’s, and health care plans utilized in schools.

Register Here


FAME: Los fundamentos de la promoción escolar

Martes 17 de noviembre – 6:30 pm

Guía a los padres y cuidadores sobre cómo abogar mejor por su hijo con un trastorno hemorrágico en el entorno escolar. Esta presentación incluye una visión general de los IEP, 504 y planes de atención médica utilizados en las escuelas. Presentado por HFA.

Registrarse aquí


Rescheduled (New Date Coming Soon) – FAME – Braving Change

Ever wonder how to stay positive when confronted with personal challenges? We all experience moments of change in our lives – some bumpier than others. We’ll explore the concept of resilience in the face of change, for both children and adults, including ways to help adapt to difficult circumstances, factors that may help you, characteristics of resilient individuals, and ways of fostering these skills within your family, at school, and in the larger community.

Register Here


BleedHERs

 

Adult educational group for women in the bleeding disorder community.

This group is open to carriers, mothers, wives, daughters and sisters of individuals with inherited bleeding disorders 18 years and older.

 

WOW- Women of Worth 

Peer led group for women looking for social and emotional support within the bleeding disorders community. Women of Worth find strength and empowerment by sharing their story, resources and by creating new goals to inspire better living. Make new friends or connect with old friends and network in an intimate and safe environment.

This group is open to carriers, mothers, wives, daughters and sisters of individuals with inherited bleeding disorders 18 years and older.

 

Men’s Group

An adult group designed for men looking for comaradere, education, and social support.

20729304_1585770344827657_6614376263184185622_n

This group is open to adult men with bleeding disorders as well as fathers, sons, and brothers of those individuals with inherited bleeding disorders 18 years and older.

Women’s Retreat

womens retreat ccThe Women’s Retreat is an educational and social event focusing on issues faced by those who have a bleeding disorder as well as mothers, wives, daughters and sisters of individuals with inherited bleeding disorders 18 years and older. It provides support and education to women while enjoying a relaxing environment.  

 

The women of our bleeding disorder community had a wonderful time at the 2019 Women’s Retreat! Thank you CSL Behring for making this wonderful event happen!

 

Check back for 2020 dates and registration! 

 

Sponsored and Partnered By
Hispanic Heritage

¡Los Trastornos de Sangrado de Arizona te invitan a participar como una comunidad unida, en la Celebración de Nuestra Herencia Hispana!

*¡Todas las sesiones serán solo en español!

 

Registrarse Aqui